ext_22962 ([identity profile] mamagotcha.livejournal.com) wrote in [personal profile] mamagotcha 2012-03-07 06:38 am (UTC)

Why? The blood test is notoriously inaccurate (up to 80%, by some estimates), I have no desire to do an intestinal biopsy, and my current doctor cannot even figure out how to renew my light therapy prescription (fortunately, I can override the cutoff on the machine) or CPAP filter re-order (We just paid out of pocket... yes, I know I need a new doctor). I am experiencing good results from a gluten-free diet... ataxia is nearly gone, joint pain much improved. Just running a test to confirm what I can clearly see via empirical evidence would be a waste of resources. If I were at a crossroads... do I do A or B?... and needed more information to make a decision, then pursuing other testing options might be worth it (stool samples, etc). Until then, I'm feeling OK with being my own advocate.

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